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Get Ready
What is a rare disease? What makes a rare disease rare? Let's discover how prevalent rare diseases are and follow an example of the patient journey to find out what makes rare disease so complex for patients, families, healthcare professionals and researchers.
Learning Outcome
- Define the impact of rare disease and outline the challenges of the patient journey.
MicroLesson Sections
- Get Ready with a short introduction about what you’ll learn.
- Learn by watching an interactive video. | View navigation tips
- Dig Deeper by enrolling in a free Online MiniCourse with the option to purchase and share a JAX digital badge credential and certificate.
Terms of Use
The instructional materials of the course are available to you for the duration of the course. You may access and display the course eBook and/or video for personal use. You may not retransmit, publish, distribute, display or otherwise make available any of the course content to others. In no event may you alter or modify the course content.
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Introduction
- Learn
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The Complexity of Rare Disease
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End of MicroLesson Survey
- Dig Deeper
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Find Out More!
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Keep Learning
The Complexity of Rare Disease
Learn about the complexity of rare disease and the unique difficulty it presents to patients and families by exploring the patient journey—from diagnosis to research to drug development.
This JAX MicroLesson is self-paced and takes less than 15 minutes to complete. In this MicroLesson, you will learn about the impact of rare disease and the challenges patients and families may face—from diagnosis to research to drug development.
Learning Outcome
By the end of this MicroLesson, you will be able to:
- define the impact of rare disease and outline the challenges of the patient journey.
Target Audience
This MicroLesson is designed to meet the needs of anyone who has an interest in learning about the impact of rare disease, including patients and families.
About our Education Offerings
As an independent, nonprofit biomedical research institution founded in 1929, The Jackson Laboratory leverages its unique combination of research, education, and resources to achieve its mission: to discover precise genomic solutions for disease and empower the global biomedical community in its shared quest to improve human health. We offer comprehensive educational programs for scientists throughout their careers, from high school students and teachers to researchers at all experience levels, and for clinical providers interested in incorporating genetics and genomics into their practices.
While we are not an accredited higher education institution, we offer a variety of education programs — including free non-credit bearing MicroLessons and MiniCourses, with optional digital badge credential and certificate for purchase — designed to educate current and future scientists and to provide critical resources, data, tools, and services to researchers worldwide.
Topics address both foundational content and the research areas in which The Jackson Laboratory has earned a reputation for scientific leadership and excellence.
Catalog
If you are interested in the full Online MiniCourse experience, including the option to purchase and share a JAX digital badge credential and certificate to advance your career, check out the JAX Online MicroLesson and MiniCourse Catalog. Select MiniCourses are also available in Spanish and Mandarin.
Hardware and Software Requirements
- Audio speakers or headphones
- Screen resolution of 800X600 or higher
- Adobe Acrobat Reader 5.0 or higher
- JavaScript enabled
- 1GB of RAM
- 2GHz processor
It is always recommended to use the most up-to-date browsers and high-speed internet connections for optimal system performance.
If you need technical support, please email: Online and Digital Education at The Jackson Laboratory.
Accessibility Statement
JAX Online and Digital Education is committed to creating online learning experiences that are accessible to all learners. Our content complies with the Americans with Disabilities Act (ADA) of 1990 (as amended in 2008) and with associated federal and state laws. We are dedicated to continually improving the user experience for everyone and applying the most current accessibility standards.
For more details, please download: JAX Online MicroLessons and MiniCourses Accessibility Information.
